With appropriate ethics committee and Health Research Authority privacy committee approval, identifiable information was gathered from pre-2000 clinical records for a cohort study of cancer in twins in England and Wales. Identifiers (name and date of birth) were sent to the Office for National Statistics and NHS Digital, who have and continue to notify the study of cancer registrations and mortality (cause and date of death information sources from civil registration data). This date is used for analysis of risk factors for cancer and mortality in the cohort. Appropriate ethics and data protection approval is carried out at all levels in the process.
If you think that you may have been included in this study and want further information or if you wish to opt out of it, please do not hesitate to contact us via email at [email protected] or by post at ICR Data Protection Officer, 123 Old Brompton Road, London, SW7 3RP.