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Data protection in research studies

data rainbow

The Institute of Cancer Research, with appropriate ethical and data protection approval, has conducted and holds information from:

  • A cohort and questionnaire study of young women treated for Hodgkin Lymphoma in England and Wales, investigating the risk of developing a range of treatment-related effects.
  • A case-control study of the causes of leukaemia, relating to patients with leukaemia incident before 2010 in the South East of England, plus controls.
  • A national UK study of endometrial cancers occurring before 1997 after breast cancer.
  • A study of risk factors for contralateral primary breast cancer before 2008 in women in the UK.
  • A national England and Wales case-control study of breast cancer in men, relating to patients with breast cancer incident in 2005 and later, plus controls.
  • Cohort studies of patients in the UK with insulin-treated diabetes diagnosed before 1994, several paediatric endocrine disease and treatments diagnosed before 2000, and several cytogenetic disorders diagnosed before 2003.
  • A study of cancer in twins in England and Wales.
  • A cohort study evaluating the NHS breast screening programme, relating to patients screened before 2006.
  • A randomised trial to evaluate whether adding chemotherapy and/or ovarian suppression increases the benefits of prolonged (5 years) tamoxifen for women with early breast cancer. The trial launched in 1993 and closed to recruitment in September 2000
  • A randomised trial, set up in 1990, to determine whether giving adjuvant hormone therapy (AHT) affects survival or disease-free survival when given to women with ovarian cancer. The trial recruited 150 women between February 1990-November 1995 with epithelial ovarian cancer. Patients are followed up for survival.
  • The national Standardisation of Radiotherapy (START) Trial in breast cancer was launched in January 1999 and aimed to identify the optimal regimen in terms of tumour control, late normal tissue effects and patient-reported quality of life, and to standardise routine radiotherapy treatments throughout the NHS for women with early breast cancer. The trial launched in 1999, and closed to recruitment in October 2002.
  • An ongoing study that followed patients with stage I seminoma, initially treated with radiotherapy between 1960 and 1992, for incidence of second cancers and specific causes of death. 

 

If you think that you may have been included in one of these studies and want further information about it or wish to opt out of it we will fully respect your wishes, please let us know by contacting participantDPA@icr.ac.uk.

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